Thursday, May 3, 2012

Springtime fun

Spring officially arrived a little over a month ago.  For many psoriasis and psoriatic arthritis patients, however, the cold morning/warm daytime/cold nighttime routine is a painstaking journey to endure on the way to the days of constant summer warmth.  Many arthritis sufferers welcome the summer because the heat of the sun seeps into our joints and gives us those all-natural shots of Vitamin D. that we need  so bad.  Another huge benefit is the extra surge of energy that comes when the D starts to work and help ease some of that nasty winter pain.

So what is going on in my world this spring?  I am really amazed at the amount of energy I manage to find in my days lately.  It's a really good thing I started that exercise regimen earlier this year, because I seem to be on the go a lot these days.  Between preschool and church activities, both of my writers groups, and whatever else life throws at us, it seems like there is barely ever a moment to just sit down and relax. 

A while back I was having some trouble with my knees bothering me frequently, so my doctor put me on 50,000 I.U. of Vit. D. per week.  I was pretty shocked at the high numbers, but she assured me that it wasn't too high, especially since my levels had tested on the low end of the scale.  I was amazed after a couple of weeks that I felt better.  By the time I went back for my 3 month checkup, I couldn't even remember how long it had been since my knees stopped hurting!  This has been a huge help and energy boost.  I am currently down to a max of 35,000 I.U. per  week, with an appointment scheduled for next Wednesday (5/9) to see where my levels are at now.

Also got new X-rays done today.  The X-rays are updates to compare with the ones we took last year so that we can see how fast or slow my arthritis is progressing, and what damage has been done to my joints over the past 12 months.  I have noticed some changes in the second toe on my right foot, as well as the index finger on my right hand.  My toe is completely out of "whack" , for lack of a better explanation.  It isn't broken, or dislocated, but it is very out of place.  Tomorrow I will try and post a pic to give you a better idea of what I'm talking about, but basically my second toe seems to be growing sideways towards my third toe instead of straight.  The problem with my index finger is that I have what feels like a large amount of bone deterioration in the upper joint.  If you feel of the finger, the best description would be that it feels like a huge indentation in the bone.  I'm hoping the X-rays will give us some insight into what is going on with that. 

In other news, I have taken on a new volunteer venture with Abbott, the company who makes my Humira medication.  I have joined their SPEAK Network, where I will be able to share my psoriasis story/journey with others in need of education, support, or research information.  I look forward to working with them to help spread psoriasis awareness, and hope that one day we will find a cure! 

11 comments:

  1. tracy.rose@healthline.comAugust 6, 2012 at 10:45 AM

    Hi Carla,

    Healthline editors recently published the final list of their favorite Psoriasis blogs and your blog made the list. You can find the complete list at: http://www.healthline.com/health-slideshow/best-psoriasis-blogs (in no particular order). We encourage you to share your status as one of the best blogs on the web with your friends, family, & followers.

    We also created a set of badges you can easily embed on your site & anywhere else you see fit:

    http://www.healthline.com/health/psoriasis-badges

    Please let me know if you have any questions.

    Congrats & continue the great work!

    Warm Regards,
    Tracy

    ReplyDelete
  2. tracy.rose@healthline.comNovember 17, 2012 at 11:37 AM

    Hi Carla,

    Healthline recently finished putting together a collection of the best online psoriasis videos. You can find it a: http://www.healthline.com/health-slideshow/best-videos-psoriasis

    We encourage you to share the list with friends, followers, and subscribers.

    Thank you in advance for your consideration.

    Warm Regards,
    Tracy

    ReplyDelete
    Replies
    1. Check the site. There is no such thing as one universal cure, everybody is different, and if you still have problems with other treatments – try silica bath http://www.silivingwater.com/pages-psoriasis ! There is a youtube video as well.
      Give it a try and you thank me later! #psoriasis

      Delete
  3. This post has added to my knowledge of psoriasis and now i know more about psoriatic arthritis.

    ReplyDelete
  4. tracy.rose@healthline.comDecember 24, 2012 at 4:06 AM

    Hi Carla,

    Healthline recently kicked off its second annual "Best Health Blog of 2012" contest & our editors have nominated The Inside Out Of Psoriasis. You can find your blog at http://www.healthline.com/health/best-health-blogs-contest by searching or sorting.

    We encourage you to promote the contest amongst your readers & friends. The blog with the most votes on February 15, 2013 at 11:59 pm will win $1000, 2nd place wins $100 and 3rd place nabs $50.

    You can also add a 'vote for me' badge to your site by going to: http://www.healthline.com/health/contest-badges, and clicking 'embed.'

    Please let me know if you have any questions.

    Warm Regards,

    Tracy

    ReplyDelete
  5. Hello Carla,
    Thanks for all of your hard work--looks like it paid off in all of those nominations above! I just wanted to write to see if you'd be interested in a guest post for your site to jumpstart your content again. I am a Certified Health Education Specialist and freelance health and wellness writer. I also have a Masters in Biology and I am in-progress on a PhD in Health Services Management.

    If you're up for it, I'd love to write about some home treatments for psoriasis that can help manage symptoms. Some of my recent work can be viewed at http://www.womenshealthcaretopics.com/blog. I hope you and your readers would be interested in the topic I suggested (or something else I could write for you!), and I look forward to hearing from you.

    Thanks and take care!
    Katie

    ReplyDelete
  6. This post been helpful learning more about psoriatic arthritis and look forward to more all natural treatment learnings

    ReplyDelete
  7. I really hope too that we can have cure for psoriasis very soon.

    ReplyDelete
    Replies
    1. Check the site. There is no such thing as one universal cure, everybody is different, and if you still have problems with other treatments – try silica bath http://www.silivingwater.com/pages-psoriasis !
      Give it a try and you thank me later! #psoriasis

      Delete
  8. tracy.rose@healthline.comAugust 28, 2013 at 3:10 PM

    Hi Carla,

    Healthline editors recently published their final list of the top psoriasis blogs on the web for 2013 and The Inside Out of Psoriasis made the list. You can find the complete list at http://www.healthline.com/health-slideshow/best-psoriasis-blogs (in no particular order). We encourage you to share your newfound status as one of the best blogs on the web with your friends, family, & followers.

    We also created a set of badges you can easily embed on your site & anywhere else you see fit:

    http://www.healthline.com/health/29513

    Please let me know if you have any questions.

    Congratulations!

    Warm Regards,
    Tracy

    ReplyDelete
  9. Maggie.danhakl@healthline.comDecember 4, 2013 at 7:37 AM

    Hi Carla,

    I hope all is well with you. As one of Healthline’s Best Psoriasis Blogs, I wanted to share with you a new product we just launched with our partner TrialReach.

    The search tool allows you to search for clinical trials for Psoriasis in your area.

    You can try out the tool here: http://www.healthline.com/health/trial-reach-psoriasis-clinical-trials

    I am writing to ask if you can help spread the word about this great new tool by sharing with your followers on your social communities or including this as a resource on your website.

    Please let me know if this would be possible. I’m happy to answer any other questions as well.

    All the best,

    Maggie Danhakl • Assistant Marketing Manager
    p: 415-281-3124 f: 415-281-3199
    Healthline • The Power of Intelligent Health
    660 Third Street, San Francisco, CA 94107

    ReplyDelete